FOR many local families struggling with the round-the-clock demands of a life-limited child, Acorns' new children's hospice is, quite simply, 'a lifeline.' After six years of planning and building, the charity opened the 10-bed purpose-built facility in March this year.
Since then, a number of Gloucestershire families have either visited or stayed at the hospice, which is only a 30-minute drive from Gloucester on the south side of Worcester.
Although these families' needs are different, they all say the same thing - that Acorns' new hospice is just what they have been waiting for.
Fourteen-year-old Craig Morris, from Gloucester, is a regular visitor to the new hospice. Craig, who has Duchenne Muscular Dystrophy (a progressive condition that gradually weakens the muscles in the body) used to stay at one of Acorns' other children's hospices in Birmingham.
He now visits Acorns in Worcester for respite care and has already made lots of friends with the nurses and other young people who use the adolescent's facility at the hospice. This gives teenagers like Craig more privacy and space away from the younger children.
Craig said: "I really enjoy swimming in the pool. I also like playing computer games and having wheelchair races in the corridors when I go to stay!"
Craig's parents Lorna and Roy Morris think that Acorns is a positive experience for their son. "Craig's confidence is growing through doing new things and meeting new people. It's helping him become more independent," says Roy.
Acorns' personal approach is something Lorna appreciates. "We know Craig is in good hands and will be well looked after when he stays. Staff have really taken time to get to know him. It's the little things that makes Acorns so special."
The family is also supported by an Acorns' community worker, Joy Davies, who works specifically with Gloucestershire families.
Lorna adds: "It's good to talk to someone about the practical things that will make Craig's life easier. Joy is like a friend. She will always try to help us or put us in touch with someone who can."
The new hospice also means that Craig's sisters, Kirsten and Kimberly can join in the many activities Acorns organises for siblings.
The Hughes' from Kingsholm are another local family to benefit from the hospice.. Bob and Jayne stayed there during the first week it opened with their 10-year-old son, Jake, who suffers from severe cerebral palsy and epilepsy and has no speech or mobility.
"We can leave Jake in the hands of skilled and caring staff and also enjoy some quality time with him away from home. He particularly enjoys the multi-sensory room, with its sound effects and bright colours," says Jayne.
"Respite care is vital for families with a life-limited child, "says Bob. "It gives us chance to recharge our batteries. We can also spend some quality time together as a couple and with our eight-year-old daughter Alice which is really important."
The hospice provides respite, emergency and terminal care across Gloucestershire, Herefordshire and Worcestershire. A community team at the hospice, also works with local families, offers 24-hour emotional and practical support as well as special support for siblings and bereavement counselling.
There can be no doubt the new hospice is making a big difference to local children's lives, but as head nurse Angela Mercer explains: "With less than 10% of our funding coming from statutory sources and the hospice costing 00 a day to run, we rely on the continued support of local people, groups and businesses to ensure we can keep the hospice up-and-running.
"We are delighted that Gloucester Rotary Club's President has chosen Acorns as his charity for this year. It's just the kind of support and commitment we need. On behalf of Acorns' children and families, thank you."
ACORNS FACTFILE
* There is no charge to families who use Acorns' services.
* Acorns Worcester is the charity's third hospice.
*60% of the children using Acorns hospices are aged 11 years or above. One of its children will die each week.
* Acorns is committed to working with families regardless of culture, race, religion, beliefs or individual circumstances.
* Acorns relies on public donations for 91% of its funding.
* It currently costs 00 a day to run one of Acorns hospices.
* If you would like to find out more about Acorns visit www.acorns.org.uk
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